At the age of 28, Angie has suffered post-coital urinary tract infections (UTIs) for her entire 20s. Following an investigative cystoscopy to find the cause, her situation took a dramatic turn for the worse. She went from suffering UTI symptoms only after sex, to suffering them constantly. Since dipsticks and cultures no longer showed the infection, she was petrified the diagnosis of an 'incurable urinary syndrome' was looming. Angie begged for a referral to a specialist UTI clinic in London for a second opinion where she was swiftly diagnosed with a chronic bladder infection. After five years of antibiotic treatment, Angie's life has much improved from her desperate earlier years, but her embedded infection remains stubborn and difficult to fully shift. Find out more about Angie's journey.
Áine started experiencing recurrent urinary tract infections (UTIs) at the age of 12. As she grew older, her recurrent UTIs became more frequent. She always responded to antibiotic treatment, but sometimes she would need a repeat course to fully clear her symptoms. In her early 30s, she came down with UTI that didn't clear up with the usual treatment. After a year of suffering persistent and painful UTI symptoms, she was diagnosed with interstitial cystitis (IC) and advised to try and manage her symptoms through diet changes. Another year on, Áine discovered her diagnosis had been wrong and was diagnosed with a chronic UTI and endometriosis. After being prescribed appropriate antibiotic treatment targeting her embedded infection, and having a laparoscopic excision of the endometriosis, she fully recovered in 12 months.
Mark’s bladder problems began when he was only four. By the time he was a young adult, an anatomical cause had been identified and surgically corrected, resulting in a new lifestyle of daily self-catherisation. This is when the constant UTIs began. For the next 14 years, Mark suffered intermittent and back-to-back UTIs, some testing positive, others not. He was treated with combinations of short-course and low-dose antibiotics, but his infection returned within days of completing each course. In his late 30s, Mark’s infection spread and he knew more of the same short-course, low-dose antibiotic treatments would never release him from the ongoing cycle of pain and suffering. He knew it was time to search for a doctor who was prepared to treat his embedded UTI differently. Read more about Mark’s incredible journey.
Jessica was 25 when she felt UTI symptoms come on suddenly. A visit to the doctor and a dipstick test confirmed there was no infection and she was sent home. Her urinary symptoms persisted and were getting worse, yet repeat tests said there was no infection. Over two years, Jessica was sent from doctor to doctor to find out what was wrong. She was diagnosed with interstitial cystitis (IC), endometriosis and depression. She was offered procedures that only made her worse. Being prescribed even more medications, Jessica decided it was time to act on her original instinct that she had an infection. After pursuing a different type of test, it turned out that not only did she have an embedded bladder infection, she was also suffering from chronic Lyme disease. Read how Jessica went from rock bottom to gradually working her way back to good health and a normal life.
When Jean started having 'women's issues' after menopause, she had no idea a UTI would send her health into such decline. Repeat negative UTI tests misled her doctors into thinking there was no infection and she was prescribed antidepressants to deal with her growing state of panic. In a determined effort to find better answers, she was relieved to be diagnosed with a chronic UTI and was immediately started on treatment. She soon discovered a combination of a urinary antiseptic and Chinese herbal medicine was her answer. Jean is convinced chronic UTI is a multi-faceted condition that requires an approach to heal the body, mind and soul. Read more about how Jean healed her chronic UTI and reclaimed her life.
Sarah is an American woman whose UTI problems started in her teens. Antibiotics worked well at the beginning, but overtime the infections persisted and the treatment no longer worked as it once did. When her UTI tests started to show negative for infection, her doctors offered medication for her building anxiety instead. A urogynaecologist was able to keep her symptoms under control, but strong side effects from the medication left her feeling awful. Looking for a more natural solution to her bladder symptoms, she found a new healthy lifestyle offered more than just relief from her relentless bladder symptoms. Not only was she noticing her bladder feeling better, she was feeling better all over. Read more about Sarah's recovery here.
While on summer holidays, a simple UTI was the start of a horrid year of illness, pain and anxiety for British woman, Clare. Short-courses of antibiotics quickly cleared her UTI symptoms, but they returned each time. Repeat dipsticks and culture tests confused her doctors because they were unable to confirm an infection was present. Being a nurse practitioner and understanding her symptoms and her own body, she knew an infection was what she was dealing with. Clare was referred through the healthcare system, had the usual tests and was offered many of the standard treatments for managing her symptoms. Before embarking on this route, she found a specialist with the expert knowledge to diagnose her condition and treat the infection that had become embedded in her bladder. This is Clare's story.
To be diagnosed with a chronic UTI in Australia is no mean feat. Chronic UTI is a largely unrecognised and misunderstood condition. It is common for people with these chronic infections (who are predominantly women) to be referred through the medical system—sometimes for years and even decades. They see numerous specialists and have multiple tests, often walking away with a urinary syndrome diagnosis. Ongoing symptoms and pain management is usually the best that can be offered. For these people, the future can be bleak. This month we talk to five Australian women who have long-suffering UTI histories of between one and 35 years. Through their perseverance, each of these women found their way off the medical merry-go-round and were finally diagnosed and properly treated for a chronic UTI. Read more to find out how they reclaimed their lives and found their way back to health.
Alison was in her mid-20s when she was struck with her first UTI. A standard three-day antibiotic treatment cleared her symptoms, but they returned soon after ... and were much more serious. Unbeknown to her, Alison's bladder infection had ascended to her kidneys and had become life-threatening. With little forewarning, she was hospitalised numerous times with sudden acute attacks of pyelonephritis and sepsis. Each stint in hospital meant weeks of recovery time at home. Alison's mum knew it was not normal for a young, active woman to have become so suddenly vulnerable and seriously ill. Through a GP friend, she learnt about a UTI specialist in London and booked an appointment for her daughter immediately. Alison and her mother are both sharing their compelling story.