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Following a landmark survey dedicated to women's health, in January 2024 the Victorian state government announced it was conducting an inquiry into women's pain. The Inquiry will report on the lived experiences of Victorian girls and women and is expected to provide recommendations to inform improved models of care and service delivery in the state. In July 2024, Chronic UTI Australia made a submission on behalf of women and girls with chronic UTI.  You can read it here.

In 2023 England’s National Health Service (NHS) responded to public pressure by finally recognising chronic urinary tract infection (UTI) as a distinct condition requiring specialist diagnosis and treatment. The development could pave the way for patient advocates in Australia and other countries who are campaigning their own authorities for major improvements to UTI guidelines.

The Hearing Patient Voices project surveyed 410 people from around the world with chronic urinary tract infection (UTI).  The online survey measured the impact chronic UTI has on quality-of-life and focused on symptoms, various life domains, emotional wellbeing, healthcare experiences and avoidable costs to the health system.  You can read a summary, and download the full Hearing Patient Voices survey report, below.

A common urinary tract infection left Danielle with chronic symptoms that doctors misdiagnosed as interstitial cystitis (IC)—an incurable, yet questionable, urinary syndrome that is now under heavy scrutiny.  Once she found a doctor who understood her condition, she began a treatment that targeted her infection.  Read more about Danielle's story.

(Carly's story was updated in October 2024.)  Carly was 21 when she had her first UTI.  She was treated with antibiotics and a week later her symptoms were back.  This pattern continued. Her doctor believed each episode was a new infection but she wasn't so sure.  She decided to take to the internet to learn more.  She first heard about Hiprex when reading through some chronic UTI websites and decided to buy some and give it a go.  After 10 months taking Hiprex daily, along with a three-month trial on antibiotics, she feels completely well and is excited to be planning her wedding.

 

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