When Danielle started having bladder symptoms, she expected she had a UTI. But her urine tests were 'negative' and she was told she had interstitial cystitis (IC) and a mental health disorder instead. She soon lost her job, her friends and felt no doctors believed her. She read about a woman who had a similar experience and was diagnosed by a specialist with a chronic urinary tract infection (UTI). This was the first time she felt any hope for the future. Read more about Danielle's story here.
Carly was 21 when she had her first UTI. She was treated with antibiotics and a week later her symptoms were back. This pattern continued. Her doctor believed each episode was a new infection but she wasn't so sure. She decided to take to the internet to learn more. She first heard about Hiprex when reading through some chronic UTI websites and decided to buy some and give it a go. After 10 months taking Hiprex daily, along with a three-month trial on antibiotics, she feels completely well and is excited to be planning her wedding.
After frequent international travel for work, Julie developed a series of complex symptoms that were badly impacting her health. Her symptoms were put down to an auto-immune condition that she had to live with. Six years on she developed further symptoms – this time relating to her bladder. Her doctors explored and treated several problems that were identified, but her bladder symptoms persisted. After eight years of managing bladder pain and incapacitating reduced capacity and frequency, and undergoing various disappointing treatments, she decided to use her academic skills to find a proper solution. She consulted with an Australian urologist who recommended she read 'Cystitis Unmasked' by the late Professor James Malone-Lee. They both agreed she would trial a treatment for chronic bladder infections. Within weeks, Julie's bladder symptoms started to vanish and her life finally took to a turn for the better. Read more about Julie's journey to reclaim her health.
Online information and support groups can be great places to link with others who are in a similar situation. This can help reduce feelings of isolation often experienced by people suffering silently with persistent lower urinary tract symptoms (LUTS). Online groups allow for the sharing of information and personal experiences and are good places to access support—or to support others. We had a chat with the administrators of the Chronic and Recurrent UTI Support Group (Australia and New Zealand)—a Facebook group focused on science-based discussions around diagnosis and treatment for chronic UTI. The group has a strong emphasis on exploring solutions to overcome the challenges of accessing treatment in our region. Online support groups are not for everyone but they can play a helpful role for many people who are seeking information and support.
Thousands of hearts around the world broke at the news of Professor James Malone-Lee’s passing in the early hours of Saturday morning after a short illness forced his retirement from researching urinary tract infections (UTI) and treating patients.
Jean shared her story with us in May 2019. After menopause things had started to go wrong. Among her worries, Jean had developed UTI symptoms but her urine tests kept coming back negative and she was prescribed antidepressants to deal with her increasing anxiety. She refused to accept her problems were psychological and she continued to search for answers. Eventually she was diagnosed and treated for a chronic UTI. Jean found Hiprex and Chinese herbs was the answer for her and she improved in leaps and bounds. Three years after completing her combination treatment, Jean remains happy and well. Read Jean's updated story.