While on summer holidays, a simple UTI was the start of a horrid year of illness, pain and anxiety for British woman, Clare. Short-courses of antibiotics quickly cleared her UTI symptoms, but they returned each time. Repeat dipsticks and culture tests confused her doctors because they were unable to confirm an infection was present. Being a nurse practitioner and understanding her symptoms and her own body, she knew an infection was what she was dealing with. Clare was referred through the healthcare system, had the usual tests and was offered many of the standard treatments for managing her symptoms. Before embarking on this route, she found a specialist with the expert knowledge to diagnose her condition and treat the infection that had become embedded in her bladder. This is Clare's story.
To be diagnosed with a chronic UTI in Australia is no mean feat. Chronic UTI is a largely unrecognised and misunderstood condition. It is common for people with these chronic infections (who are predominantly women) to be referred through the medical system—sometimes for years and even decades. They see numerous specialists and have multiple tests, often walking away with a urinary syndrome diagnosis. Ongoing symptoms and pain management is usually the best that can be offered. For these people, the future can be bleak. This month we talk to five Australian women who have long-suffering UTI histories of between one and 35 years. Through their perseverance, each of these women found their way off the medical merry-go-round and were finally diagnosed and properly treated for a chronic UTI. Read more to find out how they reclaimed their lives and found their way back to health.
Alison was in her mid-20s when she was struck with her first UTI. A standard three-day antibiotic treatment cleared her symptoms, but they returned soon after ... and were much more serious. Unbeknown to her, Alison's bladder infection had ascended to her kidneys and had become life-threatening. With little forewarning, she was hospitalised numerous times with sudden acute attacks of pyelonephritis and sepsis. Each stint in hospital meant weeks of recovery time at home. Alison's mum knew it was not normal for a young, active woman to have become so suddenly vulnerable and seriously ill. Through a GP friend, she learnt about a UTI specialist in London and booked an appointment for her daughter immediately. Alison and her mother are both sharing their compelling story.
The festive season is usually a time for love, happiness, fun, family, friends and food. When it comes to someone with a chronic UTI, it can also be the season for unwelcome UTI flare-ups. Flares occur when bacteria embedded in the bladder wall become active (planktonic) and start to multiply in the urine, resulting in increased symptoms. Flare-ups can be triggered by a variety of things—the most commonly reported being stress (good and bad), sex, vigorous exercise, internal gynaecological procedures, bowel movements, drinking alcohol and consuming certain foods that individuals are sensitive to. Christmastime should be added to the list because it seems to be an extremely common time to experience flares, no matter where you live in the world. To help minimise the risk of a flare-up ruining your holidays, we asked people with chronic UTI to share their best prevention tips. This is what they told us.
Jenny is a young Italian woman who was suddenly struck with a streptococcus infection causing acute bladder and vaginal pain and burning. Despite being treated, and tests confirming the infection had cleared, her symptoms worsened and her health was in decline. After a year she was diagnosed with vulvodynia and fibromyalgia and prescribed a treatment that took the edge off her symptoms. Feeling despair and let down by standard medical treatments that left her still extremely unwell, she turned to a dietician who introduced her to a natural approach to healing systemic body inflammation and strengthen the immune system. A year on, Jenny no longer suffers her dreadful symptoms and is back to leading a normal life. You can read more about Jenny's experience here.
A simple bout of cystitis changed Michelle's life. She went from being a happy, productive member of society, to someone who suffered relentless UTI symptoms that prevented her from working, socialising with friends and family and having a normal sexual relationship with her partner. If that wasn't enough, she had become a burden to the healthcare system as well. She was quickly written-off by her specialists as being a depressed, menopausal woman with interstitial cystitis. Her diagnosis was terribly wrong and she knew it. Michelle kept digging and found a specialist who understands chronic, embedded urinary infections. After being properly diagnosed and treated for her hidden infection, she experienced relief within weeks. And after 11 months of continued treatment, she is completely symptom-free. You can read more about Michelle's chronic UTI story here.