Alicia's first ever urinary tract infection (UTI) struck in the middle of the night. She knew something was terribly wrong, but doctors at her local hospital in Spain looked at the negative dipstick and sent her home with some cream. As the weeks went on, Alicia's suffering intensified and so did her search for answers. After a multitude of doctors, tests and procedures, and trying to manage work and family while her physical and mental health deteriorated, she learnt about a clinic in nearby England specialising in diagnosing and treating patients with complicated UTIs and other urinary symptoms. She decided she had nothing more to lose and booked an appointment in the hope she had a treatable infection that her doctors had missed. Read how Alicia was eventually diagnosed with a chronic UTI.
We are thrilled to announce that Chronic UTI Australia Inc. and Sarah Willmott from Feel Better Box have joined forces to tackle the growing problem of urinary tract infections (UTIs). Sarah is no stranger to UTIs. Like so many others, her experience started innocently as a teen with the occasional post-coital UTI. It wasn't long before her UTIs turned into bouts of frequent and regular recurrent UTIs spanning several decades. When searching online for answers, she came across Chronic UTI Australia. Sarah knew instantly she wanted to involve her successful business that helps Australians feel better, to help raise much needed awareness of recurrent and chronic UTI. This year Sarah and Feel Better Box has partnered with Chronic UTI Australia as a sponsor. Read more about Sarah below.
Coby was familiar with having the occasional acute UTI, just like many of her female friends. She started to worry though when her recurrent UTIs increased in frequency. Just weeks after completing a prophylactic course of antibiotics, she developed a serious kidney infection. Reluctant to be stuck in a never ending cycle of pain and back-to-back short course antibiotics, she was determined to find a different approach to stop her infections. When her urologist mentioned other patients reported good results with D-mannose, she decided to give it a try. Within six months her recurrent UTIs were gone. Almost seven years on, she feels confident and empowered that the treatment she stumbled upon has broken her recurrent UTI cycle for good. She realises not everyone with recurrent and chronic UTI has the same success with D-mannose, but she wants to reach as many people as she can in the hope it works for others as well as it has worked for her. You can read more about Coby's experience with D-mannose here, along with a link to her information website.
At the age of five or six, Bella knew there was something different about her. Her bladder often hurt and she could not control the urgent need to race to the toilet frequently. This led to 'accidents', unsympathetic teachers, teasing kids and doctors who misunderstood the cause and the severity of her condition. Her unrelenting urinary symptoms had shaped her entire life. In her early 20s, her symptoms had become markedly worse. Newly married and with the encouragement and support of her husband, she flew to the United Kingdom to attend a chronic UTI clinic. To her relief, she was diagnosed and treated for a UTI that had plagued her for her entire life. After five months of constant antibiotic treatment, Bella cannot believe how much her symptoms have reduced and how good she feels for the first time. Now that she is receiving a treatment designed specifically for her condition, she knows she will be fully cured in time. She is looking forward to living a normal life and she is excited that some day she and her husband will start a family—something she feared might never happen. Read Bella's story here.
At just 21, Emma failed to fully respond to a course of antibiotics for a UTI. Once her treatment was finished, her symptoms returned. Negative tests eventually led her to being diagnosed with an incurable urinary condition 'interstitial cystitis', years of daily pain and the devastating loss of her baby boy at 21 weeks' gestation. Through the support of a grief counsellor, Emma gained the courage to advocate for her own health and she started to question her diagnosis. Now believing she had been misdiagnosed a decade ago, she urged her doctors to consider the possibility she could be suffering a chronic, embedded urinary tract infection (UTI). After further research, her doctors agreed and began treating her infection. Within months, her symptoms started to ease and she was pregnant again! Emma shares her bittersweet chronic UTI story here with the sincere hope it helps others like her.
Dr Nicky Thomas is a Senior Research Fellow at University of South Australia and The Basil Hetzel Institute for Translational Health Research, where he works on developing nanomedicines to treat infections that have become resistant to traditional antimicrobial therapies. Among other concerning and challenging chronic bacterial infections, Dr Thomas' team has an interest in improving the delivery and efficacy of antibiotics in people suffering chronic urinary tract infections (UTI).