Stories

When Samantha felt a urinary tract infection (UTI) come on, a negative test at the Emergency Department sent her on a pathway she never expected. In no time she was diagnosed with interstitial cystitis (IC) and she underwent repeated procedures and trialled a huge variety of medications that did nothing to stop her bladder symptoms becoming worse.  When she exhausted all options offered by her doctors, she turned to an online group for emotional support.  When she heard about chronic UTI and the diagnostic failures of UTI dipstick and culture tests, she instinctively knew this was what she had been going through for the past six years and sought the advice of a doctor who knew how to diagnose and treat chronic UTI.  With endometriosis, an ovary cyst and pudendal neuralgia having also been diagnosed, she took a multi-faceted approach to her treatment. Nine months in, Samantha is relieved to feel normal again and she has become passionate about encouraging people with confusing health conditions to find the strength and support to advocate for their own health.

 

Linda had bladder issues for as long as she can remember.  Even as a child she was aware she needed the bathroom more than most.  It was inconvenient and sometimes embarrassing, but she developed strategies to manage social events without drawing too much attention to her toilet trips.  It was after menopause that her bladder symptoms escalated and her strategies and short-course antibiotics stopped working.  Linda did some research and asked her GP to refer her to a clinic specialising in chronic UTI and other bladder conditions.  At her first appointment she was diagnosed with a chronic UTI and she has never looked back.  Read how Linda went from an entire lifetime managing a troublesome 'weak bladder' to living a fulfilling, fully productive and happy life.

 

Diane started to get recurrent UTIs several years after surgery for urinary incontinence using transvaginal tape (TVT).  The surgery was successful but for a time she needed a catheter to empty her bladder.  After a routine colonoscopy and stopping hormone replacement therapy (HRT), a tsunami of UTIs soon followed.  After completing a short course of antibiotics, her infection returned without fail.  This happened time and again and she was having UTIs monthly.  She learned about chronic UTI through an online support group and asked her urologist to trial her with an evidence-based treatment protocol for chronic UTI used in the United Kingdom.  With continuous, full dose antibiotics for six months, she is thrilled to report she has been UTI and symptom free for two years.  Read more about Diane's story here.

 

Kyla's recurrent UTI began in her late teens.  The infections were so regular and persistent that it completely dominated her 20s.  Each time she had sex she would end up with a UTI and in acute pain at the hospital emergency department.  She was so ill dealing with a UTI, or getting over one, that she missed out on socialising with her friends and having fun—instead she was often home in bed wondering what her future held.  She was referred to specialists who ordered all types of bladder tests and procedures.  Nothing worked and she was discharged back to the care of her general practitioner (GP).  The GP referred her to another UTI specialist, but this time was different.  The specialist diagnosed her with a chronic UTI and started a treatment protocol that turned her life around.  Her improvement has been slow and bumpy, but after seven years she is living a normal life and is sure she will be off her treatment very soon.  Read more about Kyla's story and her tips for others like her.

 

Laura's experience with urinary tract infections (UTIs) was limited.  She'd only had two UTIs before, but her third was different.  It did not fully respond to antibiotics and her symptoms returned within days to weeks after each prescribed treatment.   She went through the usual process of referrals and investigative tests and found no answers.  After reading information online about chronic UTI, she knew instantly this is what she had.  She met with a new GP who thought it was likely she had a chronic UTI and agreed to treat her.  Months into her new treatment regimen, Laura had a video consult with a leading chronic UTI doctor in London and they decided upon working with her existing GP to continue her treatment.  Nine months in, Laura is almost back to her old self and is looking forward to finishing her treatment.  You can read more about Laura's success below.

 

Lauren first shared her story with us in May 2018.  She had been misdiagnosed with interstitial cystitis when an acute UTI did not resolve and she was prescribed a series of medicated bladder instils by her Australian urologist.  Although this treatment helped take the edge of her symptoms, she sought a second opinion from a UTI specialist in the United Kingdom.  She was diagnosed with a chronic UTI and immediately started on a scientifically validated antibiotic treatment protocol.  After 22 months of continuous treatment, she has fully recovered and celebrates 18 months’ symptom and medication free!  Read Lauren's updated story.

 

Michele developed a septic UTI at the age of 21.  This was the start of nearly three decades of recurrent UTIs, persistent UTI symptoms, negative tests, positive tests, doctors' appointment, invasive procedures and much ongoing pain and suffering for her.  When she was searching online for explanations for her mysterious condition, Michele came across an online support group for people with embedded, chronic UTIs.  This was an important turning point that led her to find other women who were being treated by a chronic UTI specialist in the United Kingdom and, a little later, another based in the United States.  Michele consulted with both doctors in person.  With just over a year of treatment, she can now lead a normal life and says she hasn't felt this good in years.  Read more about Michele's chronic UTI story.

Jane was diagnosed with interstitial cystitis (IC) after having persistent UTI symptoms that her doctor put down to over active bladder (OAB) and possibly gynae problems.  Despite the shock diagnosis, she discovered her symptoms miraculously disappeared when she took a long course of antibiotics and she remained well for another 10 years.  She was distraught when her UTI symptoms returned, so she sought treatment from a chronic UTI specialist.  There was gradual improvement on long-term, full dose antibiotics, but her recovery really accelerated when she was diagnosed with vaginal atrophy and began localised oestrogen and then systemic hormone replacement therapy (HRT).  Read more about Jane's recovery here.

Alicia's first ever urinary tract infection (UTI) struck in the middle of the night.  She knew something was terribly wrong, but doctors at her local hospital in Spain looked at the negative dipstick and sent her home with some cream.  As the weeks went on, Alicia's suffering intensified and so did her search for answers.   After a multitude of doctors, tests and procedures, and trying to manage work and family while her physical and mental health deteriorated, she learnt about a clinic in nearby England specialising in diagnosing and treating patients with complicated UTIs and other urinary symptoms.  She decided she had nothing more to lose and booked an appointment in the hope she had a treatable infection that her doctors had missed.  Read how Alicia was eventually diagnosed with a chronic UTI.

Coby was familiar with having the occasional acute UTI, just like many of her female friends.  She started to worry though when her recurrent UTIs increased in frequency.  Just weeks after completing a prophylactic course of antibiotics, she developed a serious kidney infection.  Reluctant to be stuck in a never ending cycle of pain and back-to-back short course antibiotics, she was determined to find a different approach to stop her infections.  When her urologist mentioned other patients reported good results with D-mannose, she decided to give it a try.   Within six months her recurrent UTIs were gone.  Almost seven years on, she feels confident and empowered that the treatment she stumbled upon has broken her recurrent UTI cycle for good. She realises not everyone with recurrent and chronic UTI has the same success with  D-mannose, but she wants to reach as many people as she can in the hope it works for others as well as it has worked for her.   You can read more about Coby's experience with D-mannose here, along with a link to her information website.