Stories

Linsey is a nurse living in the United States.  Her problems began at the age of 33 after developing a UTI that did not respond to three short-courses of antibiotics.  Given no alternative but to live with severe bladder and urethral pain, her search led to a practitioner in her country who was able to order advanced diagnostic tests and finally treat her infection.  During her healing she discovered she had other systemic infections, including Lyme disease.  Addressing these additional infections was key to her recovery.  Linsey has been symptom-free for the past two years, but says it is more important than ever to remain vigilant and take a holistic approach to her body and her health.  You can read more about Linsey here.

When Lauren got her third UTI, she never imagined it would be the beginning of a gruelling 18-month journey taking her from one side of the world to the other, and then back again. What looked to be a straight forward bladder infection, quickly spiralled into the most frightening and miserable experience of her life. As her symptoms rapidly declined, so did her mental health as she was subjected to rounds of tests and medical procedures to explain her symptoms.  After a lengthy process of elimination, Lauren was diagnosed in Australia with interstitial cystitis (IC) and started on a course of bladder instils. Refusing to accept this was her future, more research led her back to the United Kingdom.  The day after her arrival, she was finally diagnosed correctly with a chronic UTI and prescribed a treatment plan for the infection that had become embedded in her bladder wall. Ten months later, Lauren has her life back—she is virtually symptom free and feeling excited about completing her treatment in the coming months. You can read more about Lauren's chronic UTI journey here.

Olivia is a British woman whose battle with recurrent UTIs started decades ago.  What first began as occasional, seemingly uncomplicated acute UTIs, eventually turned into frequent, severe recurrent attacks.  When her acute attacks tested positive, she would receive the usual UTI treatment.  When the tests failed to identify bacteria, she was abandoned by her doctors.  After jumping through numerous medical hoops, being repeatedly offered derogatory advice and receiving painful surgical procedures that did more harm than good, Olivia eventually found a specialist who knew what was going on.   She was finally diagnosed and treated for a chronic UTI.  Olivia is a 'long hauler' and healing from her embedded bladder infection has been a test of endurance.  After more than five years in treatment, she is ecstatic to finally be free from her UTI symptoms and looks forward to the day her treatment is complete.  You can read more about Olivia's experience here.

Life changed for this Australian woman when a simple, uncomplicated urinary tract infection (UTI) refused to go away. Relying solely on tests results, doctors were quick to disassociate her symptoms from the initial infection and diagnose her with interstitial cystitis (IC).  Following a post-operative course of antibiotics, Jenna had an unbelievable 14 year hiatus before her dreaded symptoms returned.  Realising doctors knew very little about her condition, she  decided she would find a way to get better.  Her ongoing research highlighted similarities between her 'incurable' condition and other chronic infections.  After plenty of reading and research, she decided to trial a treatment protocol used to target pathogens linked with several other conditions.  This unconventional, self-administered protocol quickly led to relief from her ongoing urinary symptoms.  In little over a year, Jenna was able to stop her treatment completely and remain symptom-free.  You can read more about Jenna's experience here.

 

Martha's story began a number of decades ago when she began experiencing UTI symptoms out of the blue.  Despite her symptoms, all the UTI tests returned negative for infection.   After going through the usual investigative procedures, she was given a diagnosis of  interstitial cystitis (IC).  Her persistence in wanting a more logical explanation led her to find a superior urine culture test that was able to identify her bacteria.  She was then finally able to access antibiotic treatment, eventually putting an end to her chronic UTI.  Over many years she has personally helped countless people from different countries, along with developing an information website and sponsoring a science research project in 2003.  As a determined and proactive patient advocate, she continues her pursuit in networking, sharing information and raising awareness of inadequate UTI testing and treatment.  This is her story.

 

Carol is an Australian woman who suffered with severe recurrent UTIs and constant, debilitating pelvic pain for several decades.  The frequency and severity of her attacks were getting worse despite being treated each time.  Her situation had become dire.  In 2014, Carol's GP agreed to start her on a chronic UTI treatment protocol used in the United Kingdom.  Thanks to this non-standard treatment approach, for the first time in over 25 years Carol reports she is finally free from her regular acute UTIs and constant pelvic pain.  You can read more about her experience here.

 

The following blog entry is a patient story from an Australian woman with a five year history of recurrent UTIs that turned into a diagnosis of 'irritable bladder' and 'interstitial cystitis'. In desperation, she took matters into her own hands and cured her chronic UTI naturally through improving her overall health,  balancing her hormones and taking natural anti-microbials.  Her personal journey has resulted in a research project collecting information from women who have managed, treated and cured their recurrent UTIs.  She has now developed a website designed to share this valuable information which she hopes will help educate and empower other women.

Lindyloo is a Dutch woman with a history of bladder problems spanning three decades.  She was treated for monthly UTIs, until short-course antibiotics no longer had an effect.  By now she was in constant pain.  Bedridden and in emotional turmoil day after day, she had the choice of giving in to her painful illness, or gather the energy to find a solution.  When Lindyloo took to the internet and learned of a UTI specialist in England, she knew she had to get to the clinic if there was any hope of improving her quality of life.  Lindyloo made the painful journey and her treatment has been life changing.  Read more about her story to find out why.

 

Anna is an Australian woman with a history of recurrent UTIs spanning 30 years.  Her infections were more an inconvenience than a problem—providing she received treatment quickly.   Over time, she would require a second course of antibiotics to fully clear her symptoms.  She followed all the advice given by doctors and drank large volumes of water to 'flush' the infections through.  It was when her UTI tests started to come back negative, that doctors wrongly concluded there was no infection and no treatment required.   With her infection left untreated, and home remedies bringing no relief, her condition naturally worsened.  By now, her painful symptoms had taken over her life.  Left with no other viable option in Australia, she travelled abroad to see a physician specialising in UTIs.  It was here that she was diagnosed with a chronic UTI and finally started on an appropriate treatment for her embedded infection—two and a half years after its onset.  Read her story here.