Online information and support groups can be great places to connect with others, share information and experiences and give and receive support. Not everyone has the same needs or expectations of a support/information group, so we have listed a number of groups for you to explore. The main benefit of online chat groups is they allow you to connect with other sufferers who are being treated, or who are researching their treatment options, for chronic UTI. They also share information that will assist in your understanding of chronic UTI and what steps are involved in finding a doctor who can diagnose and treat your condition. Please do you own research to make sure any of these groups are a right fit for you. You can also do a search on Facebook to see what else is available.
Chronic and Recurrent UTI Chat Group (Australia and New Zealand
This is a ‘private’ group that accepts residents of Australia and New Zealand only. The group provides a space to share information and support. This is a group for women and men.
Embedded/Chronic UTI Support Group
This is a large ‘private’ group that is UK-based with many international members. The group provides a space to share information and support. This is a group for women and men.
Long-Term Antibiotic Support for Chronic/Embedded UTI
This is a ‘private’ US-based support group that provides information and support for people in the US. The group accepts international members.
Chronic UTI Women’s Support Group
Men and Women’s Chronic UTI Support Group
Support Group for UTIs in Children
The above three ‘private’ groups are run by the UK-based patient advocacy organisation ‘Chronic Urinary Tract Infection Campaign’ or CUTIC UK. The first group was established in 2013 and there are many members with good knowledge and experience.
Everyday Wellness Support Group – Stop UTI Forever
This is a large ‘private’ group that focuses mostly on sharing experiences with natural UTI therapies.
Investigation of Chronic Bladder Infection
This is a ‘private’ discussion group consisting of patients, medical practitioners and microbiologists/research scientists. The focus on the group is discussing research and information.
Treatment by Ruth Kriz
This is a small ‘private’ support group only for people previously treated by Ruth Kriz.
Vaginal Atrophy Group
This is a ‘private’ UK-based information and support group for people who have been diagnosed with vaginal atrophy [VA]. Many members have been diagnosed with chronic UTI and VA.
