Comments for Chronic UTI Australia https://www.chronicutiaustralia.org.au Wed, 19 Feb 2020 10:08:40 +0000 hourly 1 https://wordpress.org/?v=5.2.5 Comment on Emma’s Chronic UTI Story by hannah h https://www.chronicutiaustralia.org.au/emmas-chronic-uti-story/#comment-13788 Wed, 19 Feb 2020 10:08:40 +0000 https://www.chronicutiaustralia.org.au/?p=17853#comment-13788 What an amazing girl you are Emma and you are so strong to get through this.
I went through exactly the same when I was 27 weeks pregnant, got a UTI, tests said no infection so i was left in agony. Thank fully my girl survived. Its just awful that this is happening to women and our sypmtoms are not being believed.
I ended up seeing prof james malone lee, thank god!
I now work as a physio in urogynaecology so I am doing lots of work around this area and spreading the word about the poor tests. We are helping many ladies who would have been left to suffer like we did.
Emma I am so sorry for your loss, my heart goes out to you, xxxxxx

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Comment on America’s Chronic UTI Story by Chronic UTI Australia https://www.chronicutiaustralia.org.au/americas-chronic-uti-story/#comment-13595 Sun, 02 Feb 2020 20:03:43 +0000 https://www.chronicutiaustralia.org.au/?p=17677#comment-13595 Hi Chrissy, you might be able to connect with America in one of the online support groups. Please contact us if you would like links: contact@chronicutiaustralia.net.au

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Comment on America’s Chronic UTI Story by Chronic UTI Australia https://www.chronicutiaustralia.org.au/americas-chronic-uti-story/#comment-13594 Sun, 02 Feb 2020 20:01:47 +0000 https://www.chronicutiaustralia.org.au/?p=17677#comment-13594 Crystal, we are very sorry to hear this. Did you join any of the online support groups when you were going through this? There are many who experience side effects but often (not always) find a way around it with their specialist. Please contact us if you’d like a list of the online support groups where you can connect with others in the chronic UTI community: contact@chronicutiaustralia.org.au

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Comment on America’s Chronic UTI Story by Crystal Scott https://www.chronicutiaustralia.org.au/americas-chronic-uti-story/#comment-13591 Sun, 02 Feb 2020 17:18:47 +0000 https://www.chronicutiaustralia.org.au/?p=17677#comment-13591 I went there, I was not treated as nicely. The medication made me so sick. I tried it for 3 months, the side effects nearly did me in. I travelled from Canada and spent a tom of money, only to end up in worse condition. They seem to be more interested in making money hat helping women.

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Comment on Jenna’s Chronic UTI Story by Chronic UTI Australia https://www.chronicutiaustralia.org.au/16430-2/#comment-13585 Sun, 02 Feb 2020 08:25:59 +0000 https://www.chronicutiaustralia.org.au/?p=16430#comment-13585 Tammy, please email us so we can put you in touch: contact@chronicutiaustralia.org.au

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Comment on Jenna’s Chronic UTI Story by Tammy E https://www.chronicutiaustralia.org.au/16430-2/#comment-13555 Thu, 30 Jan 2020 08:59:21 +0000 https://www.chronicutiaustralia.org.au/?p=16430#comment-13555 Can you put me in touch to let me know which anti parasitic drug she used???

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Comment on Carrie’s Chronic UTI Story by Sheila H https://www.chronicutiaustralia.org.au/carries-chronic-uti-story/#comment-13080 Fri, 03 Jan 2020 15:55:38 +0000 https://www.chronicutiaustralia.org.au/?p=17768#comment-13080 Your story is mine! Our stories differ in time… I have been fighting this battle for quite a bit longer (15 years… maybe to to 20) (I must admit that I didn’t have your medical basis… I trusted my drs for way too long… nor did I have the very apparent baby wipe experience.) Our stories part at your finding of Dr Bundrick. I am calling him today.

Thank you… thank you… thank you! I don’t know you but I have a vivid sense of who you are through this article. I love your soul

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Comment on Jill’s Chronic UTI Story by Chronic UTI Australia https://www.chronicutiaustralia.org.au/jills-chronic-uti-story/#comment-12356 Fri, 13 Dec 2019 06:27:35 +0000 https://www.chronicutiaustralia.org.au/?p=16329#comment-12356 May, thanks so much for sharing your experience with Chinese herbs. It’s wonderful you’ve had the same type of success Jill had treating UTIs this way. You’re welcome to contact us at contact@chronicutiaustralia.org.au if you want to talk further.

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Comment on Jill’s Chronic UTI Story by May https://www.chronicutiaustralia.org.au/jills-chronic-uti-story/#comment-12320 Wed, 11 Dec 2019 23:36:08 +0000 https://www.chronicutiaustralia.org.au/?p=16329#comment-12320 I wanted to write a post here to confirm that I also have found success using Chinese herbs. To this day I can’t tell you exactly why but I knew that the antibiotics were screwing with my gut and making me feel dependent and afraid of lifelong use and worse, immunity to treatment. My father died from antibiotic resistance and I felt my medical practitioners have never seriously contemplated my reluctance to longstanding antibiotic use. I was in my early 30s and had 8 years of on and off antibiotic treatment.

From a referral from a friend, I saw Steven Clavey at Apricot Grove in Melbourne. I was highly skeptical but my partner encouraged me to stick with it. Within weeks I was able to have sex without an antibiotic prophylactic (Steven advised me to avoid preventative antibiotics). It was 8 months of morning and night herbal use before I weaned myself off.

This was 3 years ago. I’ve since had a few infections that became medically undiagnosable as they were negative in cultures. I was sent to a uro-gynaecologist who once again put me on antibiotics (fosfomycin and Hiprex). I am grateful to her in getting this infection under control, but once again found the antibiotics playing up with my gut. She suggested I would need Hiprex long term. After a month of taking them I decided to go back to my Chinese medicine specialist to build back in a prevention method. I hadn’t seen him at all this time around because I had started to find the herbs hard to ingest. He switched up the herbs to counteract my gag reflex (they really are quite horrible), and I’m off antibiotics again completely.

The reason I advocate Chinese medicine to my friends, despite my skeptical and Western science-based nature, is because I really think the research and practices for recurring UTI’s or Interstitial Cystitis are outdated and underfunded. When we are left to advocate on our own we have no option but to try other methods. I’d rather engage a potential placebo effect than deal with whole-body repercussions of long term antibiotic use. Western medicine tends to look at organs, not overall health, and I believe women are being given a raw deal with this approach. From the latest research I’ve seen, the microbiome of the bladder is as important as the microbiome of the gut. An overproduction of E. Coli in the gut from antibiotic use can increase likelihood of transferral to the bladder, and if the microbiome of the gut has been cleansed, there’s nothing to fight off this bacteria. New research also suggests bladder E. Coli has become “super E. Coli”, through antibiotic resistance and ill-health. They’re now trying to utilise the ‘glue’ of this biofilm for innovation. I’m sure they’ll utilise our gluey bacteria before they help us remove it.

Please try Chinese Medicine. Be discerning and be skeptical, but it might be your best option if like me, you’ve been put through the specialist merry-go-round.

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Comment on Julie’s Chronic UTI Story by S barry https://www.chronicutiaustralia.org.au/julies-chronic-uti-story/#comment-11476 Wed, 20 Nov 2019 12:30:21 +0000 https://www.chronicutiaustralia.org.au/?p=16282#comment-11476 Hi julie
How are you doing now?

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