Naomi is a young Canadian woman who experienced her first UTI at the age of 19. Following typical antibiotic treatment, she was left with vague UTI symptoms that became an unwelcome daily companion. Within the following year, her symptoms gradually escalated into bi-monthly acute UTI attacks. Naomi's doctor found an antibiotic solution that quickly brought her infections under control, but she was unsure how to stop the recurrent UTIs from striking at random and dominating her life. While being treated by a popular Calgary acupuncturist for unrelated back pain, the practitioner suggested acupuncture might help her recurrent UTIs as well. Naomi, now aged 29, felt she had nothing to lose and started acupuncture treatment targeting her urinary tract in January 2019. She reports she has not had an acute UTI, or required antibiotics, in almost a year. You can read more about Naomi's acupuncture experience here.
Elle suffered chronic pelvic pain. By the time she was 25, investigations left her with diagnoses of irritable bowel syndrome (IBS), stage III endometriosis, general anxiety disorder and interstitial cystitis (IC). Even though she had never noticed bladder symptoms during this time, she was treated daily with Elmiron. Two years into her treatment, like a bolt from the blue she woke to crippling, stabbing bladder pain, abdominal pain, bladder burning and frequent, urgent urination. These symptoms never left and she had nowhere to turn. Since she was never convinced of her original IC diagnosis, she started to research other possibilities. Being in Canada, she was able to access a more sophisticated urine test and a practitioner who has a history of successfully treating patients with low grade, chronic bladder infections. After eight months of treatment targeting her infection, she says she is well on her way to being healed. You can read more of Elle’s story here.
Mark’s bladder problems began when he was only four. By the time he was a young adult, an anatomical cause had been identified and surgically corrected, resulting in a new lifestyle of daily self-catherisation. This is when the constant UTIs began. For the next 14 years, Mark suffered intermittent and back-to-back UTIs, some testing positive, others not. He was treated with combinations of short-course and low-dose antibiotics, but his infection returned within days of completing each course. In his late 30s, Mark’s infection spread and he knew more of the same short-course, low-dose antibiotic treatments would never release him from the ongoing cycle of pain and suffering. He knew it was time to search for a doctor who was prepared to treat his embedded UTI differently. Read more about Mark’s incredible journey.
While on summer holidays, a simple UTI was the start of a horrid year of illness, pain and anxiety for British woman, Clare. Short-courses of antibiotics quickly cleared her UTI symptoms, but they returned each time. Repeat dipsticks and culture tests confused her doctors because they were unable to confirm an infection was present. Being a nurse practitioner and understanding her symptoms and her own body, she knew an infection was what she was dealing with. Clare was referred through the healthcare system, had the usual tests and was offered many of the standard treatments for managing her symptoms. Before embarking on this route, she found a specialist with the expert knowledge to diagnose her condition and treat the infection that had become embedded in her bladder. This is Clare's story.
To be diagnosed with a chronic UTI in Australia is no mean feat. Chronic UTI is a largely unrecognised and misunderstood condition. It is common for people with these chronic infections (who are predominantly women) to be referred through the medical system—sometimes for years and even decades. They see numerous specialists and have multiple tests, often walking away with a urinary syndrome diagnosis. Ongoing symptoms and pain management is usually the best that can be offered. For these people, the future can be bleak. This month we talk to five Australian women who have long-suffering UTI histories of between one and 35 years. Through their perseverance, each of these women found their way off the medical merry-go-round and were finally diagnosed and properly treated for a chronic UTI. Read more to find out how they reclaimed their lives and found their way back to health.
Alison was in her mid-20s when she was struck with her first UTI. A standard three-day antibiotic treatment cleared her symptoms, but they returned soon after ... and were much more serious. Unbeknown to her, Alison's bladder infection had ascended to her kidneys and had become life-threatening. With little forewarning, she was hospitalised numerous times with sudden acute attacks of pyelonephritis and sepsis. Each stint in hospital meant weeks of recovery time at home. Alison's mum knew it was not normal for a young, active woman to have become so suddenly vulnerable and seriously ill. Through a GP friend, she learnt about a UTI specialist in London and booked an appointment for her daughter immediately. Alison and her mother are both sharing their compelling story.
A simple bout of cystitis changed Michelle's life. She went from being a happy, productive member of society, to someone who suffered relentless UTI symptoms that prevented her from working, socialising with friends and family and having a normal sexual relationship with her partner. If that wasn't enough, she had become a burden to the healthcare system as well. She was quickly written-off by her specialists as being a depressed, menopausal woman with interstitial cystitis. Her diagnosis was terribly wrong and she knew it. Michelle kept digging and found a specialist who understands chronic, embedded urinary infections. After being properly diagnosed and treated for her hidden infection, she experienced relief within weeks. And after 11 months of continued treatment, she is completely symptom-free. You can read more about Michelle's chronic UTI story here.
After suffering from recurrent UTIs for 60 years, getting through each day had become unbearable for Wendy. Her recurrent UTIs had become so unmanageable, she was living in constant pain with urinary symptoms that had her visiting the toilet up to 50 times a day. Along with countless short-course and prophylactic antibiotics, she was offered treatments such as urethral stretches to help manage her symptoms. Wendy was eventually diagnosed with interstitial cystitis/painful bladder syndrome (IC/PBS) and told she would have to learn to live with her painful symptoms. By now, she was battling an ongoing cycle of vaginal thrush and living on pain killers to get through each day. By chance, she stumbled across a UTI specialist who was experienced in treating chronic infections. Within months of starting treatment, she was surprised to find herself symptom-free and once again participating in a life she thought she had lost. Wendy's swift recovery allowed her to return to her beloved lawn bowling competition and she is now competing at a County level. Find out more about Wendy's inspiring story here.
Christine is a British woman whose recurrent UTIs started at the age of 12. Being prescribed the usual treatments, and offered routine UTI prevention tips and homeopathic remedies, her regular infections persisted. After complications brought on from successful breast cancer treatment, her recurring UTIs became worse and began dominating her life. Now out of options, Christine's practitioner referred her to a specialist clinic for recalcitrant UTIs based in London. Here she was diagnosed immediately with a chronic UTI. Her severe embedded UTI has required several changes in antibiotic therapy to bring her symptoms under control. Now that her infection is being properly managed and she's feeling better, she is cautiously optimist about completing treatment in the near future. You can read more about Christine's story here.