A simple bout of cystitis changed Michelle's life. She went from being a happy, productive member of society, to someone who suffered relentless UTI symptoms that prevented her from working, socialising with friends and family and having a normal sexual relationship with her partner. If that wasn't enough, she had become a burden to the healthcare system as well. She was quickly written-off by her specialists as being a depressed, menopausal woman with interstitial cystitis. Her diagnosis was terribly wrong and she knew it. Michelle kept digging and found a specialist who understands chronic, embedded urinary infections. After being properly diagnosed and treated for her hidden infection, she experienced relief within weeks. And after 11 months of continued treatment, she is completely symptom-free. You can read more about Michelle's chronic UTI story here.
After suffering from recurrent UTIs for 60 years, getting through each day had become unbearable for Wendy. Her recurrent UTIs had become so unmanageable, she was living in constant pain with urinary symptoms that had her visiting the toilet up to 50 times a day. Along with countless short-course and prophylactic antibiotics, she was offered treatments such as urethral stretches to help manage her symptoms. Wendy was eventually diagnosed with interstitial cystitis/painful bladder syndrome (IC/PBS) and told she would have to learn to live with her painful symptoms. By now, she was battling an ongoing cycle of vaginal thrush and living on pain killers to get through each day. By chance, she stumbled across a UTI specialist who was experienced in treating chronic infections. Within months of starting treatment, she was surprised to find herself symptom-free and once again participating in a life she thought she had lost. Wendy's swift recovery allowed her to return to her beloved lawn bowling competition and she is now competing at a County level. Find out more about Wendy's inspiring story here.
Christine is a British woman whose recurrent UTIs started at the age of 12. Being prescribed the usual treatments, and offered routine UTI prevention tips and homeopathic remedies, her regular infections persisted. After complications brought on from successful breast cancer treatment, her recurring UTIs became worse and began dominating her life. Now out of options, Christine's practitioner referred her to a specialist clinic for recalcitrant UTIs based in London. Here she was diagnosed immediately with a chronic UTI. Her severe embedded UTI has required several changes in antibiotic therapy to bring her symptoms under control. Now that her infection is being properly managed and she's feeling better, she is cautiously optimist about completing treatment in the near future. You can read more about Christine's story here.
Linsey is a nurse living in the United States. Her problems began at the age of 33 after developing a UTI that did not respond to three short-courses of antibiotics. Given no alternative but to live with severe bladder and urethral pain, her search led to a practitioner in her country who was able to order advanced diagnostic tests and finally treat her infection. During her healing she discovered she had other systemic infections, including Lyme disease. Addressing these additional infections was key to her recovery. Linsey has been symptom-free for the past two years, but says it is more important than ever to remain vigilant and take a holistic approach to her body and her health. You can read more about Linsey here.
When Lauren got her third UTI, she never imagined it would be the beginning of a gruelling 18-month journey taking her from one side of the world to the other, and then back again. What looked to be a straight forward bladder infection, quickly spiralled into the most frightening and miserable experience of her life. As her symptoms rapidly declined, so did her mental health as she was subjected to rounds of tests and medical procedures to explain her symptoms. After a lengthy process of elimination, Lauren was diagnosed in Australia with interstitial cystitis (IC) and started on a course of bladder instils. Refusing to accept this was her future, more research led her back to the United Kingdom. The day after her arrival, she was finally diagnosed correctly with a chronic UTI and prescribed a treatment plan for the infection that had become embedded in her bladder wall. After 22 months of continuous full-dose antibiotic treatment, Lauren completely recovered and is 18 months' symptom and medication free. You can read more about Lauren's chronic UTI journey here.
Olivia is a British woman whose battle with recurrent UTIs started decades ago. What first began as occasional, seemingly uncomplicated acute UTIs, eventually turned into frequent, severe recurrent attacks. When her acute attacks tested positive, she would receive the usual UTI treatment. When the tests failed to identify bacteria, she was abandoned by her doctors. After jumping through numerous medical hoops, being repeatedly offered derogatory advice and receiving painful surgical procedures that did more harm than good, Olivia eventually found a specialist who knew what was going on. She was finally diagnosed and treated for a chronic UTI. Olivia is a 'long hauler' and healing from her embedded bladder infection has been a test of endurance. After more than five years in treatment, she is ecstatic to finally be free from her UTI symptoms and looks forward to the day her treatment is complete. You can read more about Olivia's experience here.
Life changed for this Australian woman when a simple, uncomplicated urinary tract infection (UTI) refused to go away. Relying solely on tests results, doctors were quick to disassociate her symptoms from the initial infection and diagnose her with interstitial cystitis (IC). Following a post-operative course of antibiotics, Jenna had an unbelievable 14 year hiatus before her dreaded symptoms returned. Realising doctors knew very little about her condition, she decided she would find a way to get better. Her ongoing research highlighted similarities between her 'incurable' condition and other chronic infections. After plenty of reading and research, she decided to trial a treatment protocol used to target pathogens linked with several other conditions. This unconventional, self-administered protocol quickly led to relief from her ongoing urinary symptoms. In little over a year, Jenna was able to stop her treatment completely and remain symptom-free. You can read more about Jenna's experience here.
Libby's life came crashing down when her recurrent urinary tract infections suddenly became constant and stopped responding to treatment. Being forced to drop out of work and university, she was no longer able to rely on doctors and knew it was up to her to find a solution. While on university placement, a chance encounter with another chronic UTI sufferer led her to discover a unique chronic UTI treatment protocol being used successfully at a clinic in the United Kingdom. She asked her doctor for help and within months she was responding to the new treatment. In just over a year, she is almost cured and says she is firmly committed to seeing her treatment through to the end.
Jill began experiencing recurrent UTIs when she was 60. Despite receiving standard antibiotic treatment for these acute attacks, the frequency of her infections soon increased, along with alarming lab findings of growing antibiotic resistances. After suffering severe gut problems from candida overgrowth, and with labs now consistently finding a resistant ESBL-producing E coli (ESBL-EC), she turned to Traditional Chinese Medicine (TCM) and completely turned her life around. Jill has been free from recurrent UTIs for three years and has now turned her attention to lobbying for change. In 2016 she established a campaign group, BladderAction UK. The group is putting pressure on the UK government and relevant authorities to address current failures in the medical system, and to introduce better UTI testing and treatment protocols in the UK. Here is Jill’s story.
Martha's story began a number of decades ago when she began experiencing UTI symptoms out of the blue. Despite her symptoms, all the UTI tests returned negative for infection. After going through the usual investigative procedures, she was given a diagnosis of interstitial cystitis (IC). Her persistence in wanting a more logical explanation led her to find a superior urine culture test that was able to identify her bacteria. She was then finally able to access antibiotic treatment, eventually putting an end to her chronic UTI. Over many years she has personally helped countless people from different countries, along with developing an information website and sponsoring a science research project in 2003. As a determined and proactive patient advocate, she continues her pursuit in networking, sharing information and raising awareness of inadequate UTI testing and treatment. This is her story.