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chronic cystitis Tag

01 May

**UPDATED NOVEMBER 2020**

When Lauren got her third UTI, she never imagined it would be the beginning of a gruelling 18-month journey taking her from one side of the world to the other, and then back again. What looked to be a straight forward bladder infection, quickly spiralled into the most frightening and miserable experience of her life. As her symptoms rapidly declined, so did her mental health as she was subjected to rounds of tests and medical procedures to explain her symptoms.  After a lengthy process of elimination, Lauren was diagnosed in Australia with interstitial cystitis (IC) and started on a course of bladder instils. Refusing to accept this was her future, more research led her back to the United Kingdom.  The day after her arrival, she was finally diagnosed correctly with a chronic UTI and prescribed a treatment plan for the infection that had become embedded in her bladder wall. After 22 months of continuous full-dose antibiotic treatment, Lauren completely recovered and  is 18 months' symptom and medication free.  You can read more about Lauren's chronic UTI journey here.

09:29 / Stories
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01 Apr

Olivia is a British woman whose battle with recurrent UTIs started decades ago.  What first began as occasional, seemingly uncomplicated acute UTIs, eventually turned into frequent, severe recurrent attacks.  When her acute attacks tested positive, she would receive the usual UTI treatment.  When the tests failed to identify bacteria, she was abandoned by her doctors.  After jumping through numerous medical hoops, being repeatedly offered derogatory advice and receiving painful surgical procedures that did more harm than good, Olivia eventually found a specialist who knew what was going on.   She was finally diagnosed and treated for a chronic UTI.  Olivia is a 'long hauler' and healing from her embedded bladder infection has been a test of endurance.  After more than five years in treatment, she is ecstatic to finally be free from her UTI symptoms and looks forward to the day her treatment is complete.  You can read more about Olivia's experience here.

07:53 / Stories
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03 Mar

Life changed for this Australian woman when a simple, uncomplicated urinary tract infection (UTI) refused to go away. Relying solely on tests results, doctors were quick to disassociate her symptoms from the initial infection and diagnose her with interstitial cystitis (IC).  Following a post-operative course of antibiotics, Jenna had an unbelievable 14 year hiatus before her dreaded symptoms returned.  Realising doctors knew very little about her condition, she  decided she would find a way to get better.  Her ongoing research highlighted similarities between her 'incurable' condition and other chronic infections.  After plenty of reading and research, she decided to trial a treatment protocol used to target pathogens linked with several other conditions.  This unconventional, self-administered protocol quickly led to relief from her ongoing urinary symptoms.  In little over a year, Jenna was able to stop her treatment completely and remain symptom-free.  You can read more about Jenna's experience here.

 
11:04 / Stories
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01 Feb

Libby's life came crashing down when her recurrent urinary tract infections suddenly became constant and stopped responding to treatment.  Being forced to drop out of work and university, she was no longer able to rely on doctors and knew it was up to her to find a solution.  While on university placement, a chance encounter with another chronic UTI sufferer led her to discover a unique chronic UTI treatment protocol being used successfully at a clinic in the United Kingdom.  She asked her doctor for help and within months she was responding to the new treatment.   In just over a year, she is almost cured and says she is firmly committed to seeing her treatment through to the end.

 
08:02 / Uncategorized
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01 Dec

At 28-years-of-age, Beth developed a simple UTI that she would go on to endure for the next 10 years.  Living a life in unbearable and debilitating pain, she was eventually diagnosed with interstitial cystitis (IC).  To help manage the symptoms from her ‘incurable’ condition, she was prescribed serious pain medication and had a Medtronic Interstim surgically fitted to her spine.  Refusing to accept this life-long sentence, and desperately wanting a baby, she gathered her strength and continued searching for answers.  After the initial step of discovering and correcting an underactive thyroid condition, in 2015 she travelled overseas to see ‘Dr Lovely’ and was properly diagnosed and treated for a chronic UTI.  Since being properly medicated, Beth has slowly regained her health and finally become a very proud, first-time mother to a healthy, gorgeous, happy baby.  Here is her story.

 
08:35 / Uncategorized
3 Likes
02 Oct

(Julie's story was updated in March 2023.) Julie is an Australian woman whose first ever UTI did not fully respond to treatment and turned into a misdiagnosis of interstitial cystitis (IC).   Feeling she still had the infection, and becoming increasingly depressed that her UTI tests kept coming back negative despite her ongoing UTI symptoms, she decided to take matters into her own hands.  Julie began researching and came across a molecular DNA-based UTI test that identified the bacteria that her local MSU cultures were unable to find.  With further research, she decided to tackle her infection through a combination of natural anti-microbials, a nutrient dense plant-based diet, fasting and lifestyle changes.  Within a year, her self-prescribed regimen gradually strengthened her whole body and, in turn, healed her chronic UTI.  This is her story.

 
13:38 / Uncategorized
4 Likes
01 Sep

Martha's story began a number of decades ago when she began experiencing UTI symptoms out of the blue.  Despite her symptoms, all the UTI tests returned negative for infection.   After going through the usual investigative procedures, she was given a diagnosis of  interstitial cystitis (IC).  Her persistence in wanting a more logical explanation led her to find a superior urine culture test that was able to identify her bacteria.  She was then finally able to access antibiotic treatment, eventually putting an end to her chronic UTI.  Over many years she has personally helped countless people from different countries, along with developing an information website and sponsoring a science research project in 2003.  As a determined and proactive patient advocate, she continues her pursuit in networking, sharing information and raising awareness of inadequate UTI testing and treatment.  This is her story.

 
08:00 / Stories
10 Likes
01 Aug

Carol is an Australian woman who suffered with severe recurrent UTIs and constant, debilitating pelvic pain for several decades.  The frequency and severity of her attacks were getting worse despite being treated each time.  Her situation had become dire.  In 2014, Carol's GP agreed to start her on a chronic UTI treatment protocol used in the United Kingdom.  Thanks to this non-standard treatment approach, for the first time in over 25 years Carol reports she is finally free from her regular acute UTIs and constant pelvic pain.  You can read more about her experience here.

 
08:00 / Stories
3 Likes