When Samantha felt a urinary tract infection (UTI) come on, a negative test at the Emergency Department sent her on a pathway she never expected. In no time she was diagnosed with interstitial cystitis (IC) and she underwent repeated procedures and trialled a huge variety of medications that did nothing to stop her bladder symptoms becoming worse. When she exhausted all options offered by her doctors, she turned to an online group for emotional support. When she heard about chronic UTI and the diagnostic failures of UTI dipstick and culture tests, she instinctively knew this was what she had been going through for the past six years and sought the advice of a doctor who knew how to diagnose and treat chronic UTI. With endometriosis, an ovary cyst and pudendal neuralgia having also been diagnosed, she took a multi-faceted approach to her treatment. Nine months in, Samantha is relieved to feel normal again and she has become passionate about encouraging people with confusing health conditions to find the strength and support to advocate for their own health.
Linda had bladder issues for as long as she can remember. Even as a child she was aware she needed the bathroom more than most. It was inconvenient and sometimes embarrassing, but she developed strategies to manage social events without drawing too much attention to her toilet trips. It was after menopause that her bladder symptoms escalated and her strategies and short-course antibiotics stopped working. Linda did some research and asked her GP to refer her to a clinic specialising in chronic UTI and other bladder conditions. At her first appointment she was diagnosed with a chronic UTI and she has never looked back. Read how Linda went from an entire lifetime managing a troublesome 'weak bladder' to living a fulfilling, fully productive and happy life.
Diane started to get recurrent UTIs several years after surgery for urinary incontinence using transvaginal tape (TVT). The surgery was successful but for a time she needed a catheter to empty her bladder. After a routine colonoscopy and stopping hormone replacement therapy (HRT), a tsunami of UTIs soon followed. After completing a short course of antibiotics, her infection returned without fail. This happened time and again and she was having UTIs monthly. She learned about chronic UTI through an online support group and asked her urologist to trial her with an evidence-based treatment protocol for chronic UTI used in the United Kingdom. With continuous, full dose antibiotics for six months, she is thrilled to report she has been UTI and symptom free for two years. Read more about Diane's story here.
Kyla's recurrent UTI began in her late teens. The infections were so regular and persistent that it completely dominated her 20s. Each time she had sex she would end up with a UTI and in acute pain at the hospital emergency department. She was so ill dealing with a UTI, or getting over one, that she missed out on socialising with her friends and having fun—instead she was often home in bed wondering what her future held. She was referred to specialists who ordered all types of bladder tests and procedures. Nothing worked and she was discharged back to the care of her general practitioner (GP). The GP referred her to another UTI specialist, but this time was different. The specialist diagnosed her with a chronic UTI and started a treatment protocol that turned her life around. Her improvement has been slow and bumpy, but after seven years she is living a normal life and is sure she will be off her treatment very soon. Read more about Kyla's story and her tips for others like her.
Laura's experience with urinary tract infections (UTIs) was limited. She'd only had two UTIs before, but her third was different. It did not fully respond to antibiotics and her symptoms returned within days to weeks after each prescribed treatment. She went through the usual process of referrals and investigative tests and found no answers. After reading information online about chronic UTI, she knew instantly this is what she had. She met with a new GP who thought it was likely she had a chronic UTI and agreed to treat her. Months into her new treatment regimen, Laura had a video consult with a leading chronic UTI doctor in London and they decided upon working with her existing GP to continue her treatment. Nine months in, Laura is almost back to her old self and is looking forward to finishing her treatment. You can read more about Laura's success below.
Alicia's first ever urinary tract infection (UTI) struck in the middle of the night. She knew something was terribly wrong, but doctors at her local hospital in Spain looked at the negative dipstick and sent her home with some cream. As the weeks went on, Alicia's suffering intensified and so did her search for answers. After a multitude of doctors, tests and procedures, and trying to manage work and family while her physical and mental health deteriorated, she learnt about a clinic in nearby England specialising in diagnosing and treating patients with complicated UTIs and other urinary symptoms. She decided she had nothing more to lose and booked an appointment in the hope she had a treatable infection that her doctors had missed. Read how Alicia was eventually diagnosed with a chronic UTI.
At the age of five or six, Bella knew there was something different about her. Her bladder often hurt and she could not control the urgent need to race to the toilet frequently. This led to 'accidents', unsympathetic teachers, teasing kids and doctors who misunderstood the cause and the severity of her condition. Her unrelenting urinary symptoms had shaped her entire life. In her early 20s, her symptoms had become markedly worse. Newly married and with the encouragement and support of her husband, she flew to the United Kingdom to attend a chronic UTI clinic. To her relief, she was diagnosed and treated for a UTI that had plagued her for her entire life. After five months of constant antibiotic treatment, Bella cannot believe how much her symptoms have reduced and how good she feels for the first time. Now that she is receiving a treatment designed specifically for her condition, she knows she will be fully cured in time. She is looking forward to living a normal life and she is excited that some day she and her husband will start a family—something she feared might never happen. Read Bella's story here.
At just 21, Emma failed to fully respond to a course of antibiotics for a UTI. Once her treatment was finished, her symptoms returned. Negative tests eventually led her to being diagnosed with an incurable urinary condition 'interstitial cystitis', years of daily pain and the devastating loss of her baby boy at 21 weeks' gestation. Through the support of a grief counsellor, Emma gained the courage to advocate for her own health and she started to question her diagnosis. Now believing she had been misdiagnosed a decade ago, she urged her doctors to consider the possibility she could be suffering a chronic, embedded urinary tract infection (UTI). After further research, her doctors agreed and began treating her infection. Within months, her symptoms started to ease and she was pregnant again! Emma shares her bittersweet chronic UTI story here with the sincere hope it helps others like her.
Carrie had only ever had a urinary tract infection (UTI) once before. When she was 40, her second UTI refused to budge and her life soon became a revolving door of doctors and ER visits. Suffering terrible bladder and urethral pain and becoming increasingly unwell, she battled to hold herself together and manage her day-to-day life with three small children. Carrie knew her original infection had never fully cleared and it had become an infection like no other. She researched until came across a different form of testing and a doctor in the United States who was prepared to see past the negative culture tests and treat her for a chronic, embedded UTI. She is now close to being symptom-free and is back to living life as a happy, busy wife and mother. Read how Carrie fought her way back to good health.
Elle suffered chronic pelvic pain. By the time she was 25, investigations left her with diagnoses of irritable bowel syndrome (IBS), stage III endometriosis, general anxiety disorder and interstitial cystitis (IC). Even though she had never noticed bladder symptoms during this time, she was treated daily with Elmiron. Two years into her treatment, like a bolt from the blue she woke to crippling, stabbing bladder pain, abdominal pain, bladder burning and frequent, urgent urination. These symptoms never left and she had nowhere to turn. Since she was never convinced of her original IC diagnosis, she started to research other possibilities. Being in Canada, she was able to access a more sophisticated urine test and a practitioner who has a history of successfully treating patients with low grade, chronic bladder infections. After eight months of treatment targeting her infection, she says she is well on her way to being healed. You can read more of Elle’s story here.