Áine started experiencing recurrent urinary tract infections (UTIs) at the age of 12. As she grew older, her recurrent UTIs became more frequent. She always responded to antibiotic treatment, but sometimes she would need a repeat course to fully clear her symptoms. In her early 30s, she came down with UTI that didn't clear up with the usual treatment. After a year of suffering persistent and painful UTI symptoms, she was diagnosed with interstitial cystitis (IC) and advised to try and manage her symptoms through diet changes. Another year on, Áine discovered her diagnosis had been wrong and was diagnosed with a chronic UTI and endometriosis. After being prescribed appropriate antibiotic treatment targeting her embedded infection, and having a laparoscopic excision of the endometriosis, she fully recovered in 12 months.
Mark’s bladder problems began when he was only four. By the time he was a young adult, an anatomical cause had been identified and surgically corrected, resulting in a new lifestyle of daily self-catherisation. This is when the constant UTIs began. For the next 14 years, Mark suffered intermittent and back-to-back UTIs, some testing positive, others not. He was treated with combinations of short-course and low-dose antibiotics, but his infection returned within days of completing each course. In his late 30s, Mark’s infection spread and he knew more of the same short-course, low-dose antibiotic treatments would never release him from the ongoing cycle of pain and suffering. He knew it was time to search for a doctor who was prepared to treat his embedded UTI differently. Read more about Mark’s incredible journey.
When Jean started having 'women's issues' after menopause, she had no idea a UTI would send her health into such decline. Repeat negative UTI tests misled her doctors into thinking there was no infection and she was prescribed antidepressants to deal with her growing state of panic. In a determined effort to find better answers, she was relieved to be diagnosed with a chronic UTI and was immediately started on treatment. She soon discovered a combination of a urinary antiseptic and Chinese herbal medicine was her answer. Jean is convinced chronic UTI is a multi-faceted condition that requires an approach to heal the body, mind and soul. Read more about how Jean healed her chronic UTI and reclaimed her life.
While on summer holidays, a simple UTI was the start of a horrid year of illness, pain and anxiety for British woman, Clare. Short-courses of antibiotics quickly cleared her UTI symptoms, but they returned each time. Repeat dipsticks and culture tests confused her doctors because they were unable to confirm an infection was present. Being a nurse practitioner and understanding her symptoms and her own body, she knew an infection was what she was dealing with. Clare was referred through the healthcare system, had the usual tests and was offered many of the standard treatments for managing her symptoms. Before embarking on this route, she found a specialist with the expert knowledge to diagnose her condition and treat the infection that had become embedded in her bladder. This is Clare's story.
To be diagnosed with a chronic UTI in Australia is no mean feat. Chronic UTI is a largely unrecognised and misunderstood condition. It is common for people with these chronic infections (who are predominantly women) to be referred through the medical system—sometimes for years and even decades. They see numerous specialists and have multiple tests, often walking away with a urinary syndrome diagnosis. Ongoing symptoms and pain management is usually the best that can be offered. For these people, the future can be bleak. This month we talk to five Australian women who have long-suffering UTI histories of between one and 35 years. Through their perseverance, each of these women found their way off the medical merry-go-round and were finally diagnosed and properly treated for a chronic UTI. Read more to find out how they reclaimed their lives and found their way back to health.
The festive season is usually a time for love, happiness, fun, family, friends and food. When it comes to someone with a chronic UTI, it can also be the season for unwelcome UTI flare-ups. Flares occur when bacteria embedded in the bladder wall become active (planktonic) and start to multiply in the urine, resulting in increased symptoms. Flare-ups can be triggered by a variety of things—the most commonly reported being stress (good and bad), sex, vigorous exercise, internal gynaecological procedures, bowel movements, drinking alcohol and consuming certain foods that individuals are sensitive to. Christmastime should be added to the list because it seems to be an extremely common time to experience flares, no matter where you live in the world. To help minimise the risk of a flare-up ruining your holidays, we asked people with chronic UTI to share their best prevention tips. This is what they told us.
A simple bout of cystitis changed Michelle's life. She went from being a happy, productive member of society, to someone who suffered relentless UTI symptoms that prevented her from working, socialising with friends and family and having a normal sexual relationship with her partner. If that wasn't enough, she had become a burden to the healthcare system as well. She was quickly written-off by her specialists as being a depressed, menopausal woman with interstitial cystitis. Her diagnosis was terribly wrong and she knew it. Michelle kept digging and found a specialist who understands chronic, embedded urinary infections. After being properly diagnosed and treated for her hidden infection, she experienced relief within weeks. And after 11 months of continued treatment, she is completely symptom-free. You can read more about Michelle's chronic UTI story here.
After suffering from recurrent UTIs for 60 years, getting through each day had become unbearable for Wendy. Her recurrent UTIs had become so unmanageable, she was living in constant pain with urinary symptoms that had her visiting the toilet up to 50 times a day. Along with countless short-course and prophylactic antibiotics, she was offered treatments such as urethral stretches to help manage her symptoms. Wendy was eventually diagnosed with interstitial cystitis/painful bladder syndrome (IC/PBS) and told she would have to learn to live with her painful symptoms. By now, she was battling an ongoing cycle of vaginal thrush and living on pain killers to get through each day. By chance, she stumbled across a UTI specialist who was experienced in treating chronic infections. Within months of starting treatment, she was surprised to find herself symptom-free and once again participating in a life she thought she had lost. Wendy's swift recovery allowed her to return to her beloved lawn bowling competition and she is now competing at a County level. Find out more about Wendy's inspiring story here.
Linsey is a nurse living in the United States. Her problems began at the age of 33 after developing a UTI that did not respond to three short-courses of antibiotics. Given no alternative but to live with severe bladder and urethral pain, her search led to a practitioner in her country who was able to order advanced diagnostic tests and finally treat her infection. During her healing she discovered she had other systemic infections, including Lyme disease. Addressing these additional infections was key to her recovery. Linsey has been symptom-free for the past two years, but says it is more important than ever to remain vigilant and take a holistic approach to her body and her health. You can read more about Linsey here.