interstitial cystitis Tag

At just 21, Emma failed to fully respond to a course of antibiotics for a UTI.  Once her treatment was finished, her symptoms returned.  Negative tests eventually led her to being diagnosed with an incurable urinary condition 'interstitial cystitis', years of daily pain and the devastating loss of  her baby boy at 21 weeks' gestation.   Through the support of a grief counsellor, Emma gained the courage to advocate for her own health and she started to question her diagnosis.  Now believing she had been misdiagnosed a decade ago, she urged her doctors to consider the possibility she could be suffering a chronic, embedded urinary tract infection (UTI).  After further research, her doctors agreed and began treating her infection.  Within months, her symptoms started to ease and she was pregnant again!   Emma shares her bittersweet chronic UTI story here with the sincere hope it helps others like her.

Elle suffered chronic pelvic pain. By the time she was 25, investigations left her with diagnoses of irritable bowel syndrome (IBS), stage III endometriosis, general anxiety disorder and interstitial cystitis (IC). Even though she had never noticed bladder symptoms during this time, she was treated daily with Elmiron. Two years into her treatment, like a bolt from the blue she woke to crippling, stabbing bladder pain, abdominal pain, bladder burning and frequent, urgent urination. These symptoms never left and she had nowhere to turn. Since she was never convinced of her original IC diagnosis, she started to research other possibilities. Being in Canada, she was able to access a more sophisticated urine test and a practitioner who has a history of successfully treating patients with low grade, chronic bladder infections. After eight months of treatment targeting her infection, she says she is well on her way to being healed. You can read more of Elle’s story here.

In 2008 America went to the doctor for a urinary tract infection (UTI).  She was treated, but her infection came back after each course of treatment.  This went on for several months.  Her confused doctor referred her to a urologist, where she was diagnosed at the first appointment with interstitial cystitis (IC).  For five years she was treated with a cocktail of medication to help manage her symptoms, but this did little more than take the edge of her pain and caused woeful side effects.  America chanced upon information about a UTI specialist in the United Kingdom who specifically treats people like her who have been diagnosed with urinary syndromes and recurrent UTIs.  America decided she had nothing to lose and set off across the Atlantic for a consultation.   With the approval of her new doctor, she stopped her IC medication and started her new treatment.    Ten months in, she claims to feel the best she has in 10 years.  She still has some symptoms, but only rarely notices them.  After a decade of pain, despair and depression, fighting off symptoms and dealing with significant medication side-effects, she now feels she can refocus on her work, her relationship with her husband and children and her future.   America's thrilled to have her life back on track.

At the age of  28, Angie has suffered post-coital urinary tract infections (UTIs) for her entire 20s.  Following an investigative cystoscopy to find the cause, her situation took a dramatic turn for the worse.  She went from suffering UTI symptoms only after sex, to suffering them constantly.  Since dipsticks and cultures no longer showed the infection, she was petrified the diagnosis of an 'incurable urinary syndrome' was looming.  Angie begged for a referral to a specialist UTI clinic in London for a second opinion where she was swiftly diagnosed with a chronic bladder infection.  After five years of antibiotic treatment, Angie's life has much improved from her desperate earlier years, but her embedded infection remains stubborn and difficult to fully shift.  Find out more about Angie's journey.

Áine started experiencing recurrent urinary tract infections (UTIs) at the age of 12.  As she grew older, her recurrent UTIs became more frequent.  She always responded to antibiotic treatment, but sometimes she would need a repeat course to fully clear her symptoms.   In her early 30s, she came down with UTI  that didn't clear up with the usual treatment.  After a year of suffering persistent and painful UTI symptoms, she was diagnosed with interstitial cystitis (IC) and advised to try and manage her symptoms through diet changes.  Another year on, Áine discovered her diagnosis had been wrong and was diagnosed with a chronic UTI and endometriosis.  After being prescribed appropriate antibiotic treatment targeting her embedded infection, and having a laparoscopic excision of the endometriosis, she fully recovered in 12 months.

When Jean started having 'women's issues' after menopause, she had no idea a UTI would send her health into such decline.  Repeat negative UTI tests misled her doctors into thinking there was no infection and she was prescribed antidepressants to deal with her growing state of panic.  In a determined effort to find better answers, she was relieved to be diagnosed with a chronic UTI and was immediately started on treatment.  She soon discovered a combination of a urinary antiseptic and Chinese herbal medicine was her answer.  Jean is convinced chronic UTI is a multi-faceted condition that requires an approach to heal the body, mind and soul.   Read more about how Jean healed her chronic UTI and reclaimed her life.

 

Sarah is an American woman whose UTI problems started in her teens.  Antibiotics worked well at the beginning, but overtime the infections persisted and the treatment no longer worked as it once did.  When her UTI tests started to show negative for infection, her doctors offered medication for her building anxiety instead.  A urogynaecologist was able to keep her symptoms under control, but strong side effects from the medication left her feeling awful.  Looking for a more natural solution to her bladder symptoms, she found a new healthy lifestyle offered more than just relief from her relentless bladder symptoms.  Not only was she noticing her bladder feeling better, she was feeling better all over.   Read more about Sarah's recovery here.

 

To be diagnosed with a chronic UTI in Australia is no mean feat.  Chronic UTI is a largely unrecognised and misunderstood condition.  It is common for people with these chronic infections (who are predominantly women) to be referred through the medical system—sometimes for years and even decades.  They see numerous specialists and have multiple tests, often walking away with a urinary syndrome diagnosis.  Ongoing symptoms and pain management is usually the best that can be offered.  For these people, the future can be bleak.  This month we talk to five Australian women who have long-suffering UTI histories of between one and 35 years.  Through their perseverance, each of these women found their way off the medical merry-go-round and were finally diagnosed and properly treated for a chronic UTI.  Read more to find out how they reclaimed their lives and found their way back to health.

 

A simple bout of cystitis changed Michelle's life.  She went from being a happy, productive member of society, to someone who suffered relentless UTI symptoms that prevented her from working, socialising with friends and family and having a normal sexual relationship with her partner.  If that wasn't enough, she had become a burden to the healthcare system as well.  She was quickly written-off by her specialists as being a depressed, menopausal woman with interstitial cystitis.  Her diagnosis was terribly wrong and she knew it.  Michelle kept digging and found a specialist who understands chronic, embedded urinary infections.  After being properly diagnosed and treated for her hidden infection, she experienced relief within weeks.  And after 11 months of continued treatment, she is completely symptom-free.  You can read more about Michelle's chronic UTI story here.

 

After suffering from recurrent UTIs for 60 years, getting through each day had become unbearable for Wendy.  Her recurrent UTIs had become so unmanageable, she was living in constant pain with urinary symptoms that had her visiting the toilet up to 50 times a day.  Along with countless short-course and prophylactic antibiotics, she was offered treatments such as urethral stretches to help manage her symptoms.  Wendy was eventually diagnosed with interstitial cystitis/painful bladder syndrome (IC/PBS) and told she would have to learn to live with her painful symptoms.  By now, she was battling an ongoing cycle of vaginal thrush and living on pain killers to get through each day.  By chance, she stumbled across a UTI specialist who was experienced in treating chronic infections.  Within months of starting treatment, she was surprised to find herself symptom-free and once again participating in a life she thought she had lost.  Wendy's swift recovery allowed her to return to her beloved lawn bowling competition and she is now competing at a County level.   Find out more about Wendy's inspiring story here.