Global alliance: APUR
Chronic UTI Australia is a proud member of the Alliance for Patient-centred UTI Research (APUR)
Mission
The Alliance for Patient-centred UTI Research (APUR) is a global collaborative working to improve the lives of people living with urinary tract infection (UTI) by advancing the understanding and management of UTI through patient-centred research and advocacy.
Purpose
APUR’s purpose is to raise awareness of and advocate for the advancement of research that contributes to the development of more effective testing and treatment options for all forms of UTI.
The alliance strongly encourages authentic and meaningful patient and public involvement and engagement (PPIE) at all stages of research so that the patient perspective is given the weight it deserves.
By combining skills, knowledge, resources, experiences and networks, and presenting a strong and united front on behalf of the global community, APUR works to ensure positive patient outcomes are the ultimate priority in all UTI research.
APUR’s founding members
Live UTI Free is a patient and public involvement and engagement (PPIE), patient research and advocacy organisation, and co-author of two validated patient reported outcome measures for recurrent urinary tract infection. Alongside leading research, Live UTI Free provides free resources to those living with recurrent and chronic UTI. These resources include contact information for UTI specialists, free downloads to share with clinicians, and a vast range of educational materials, all via their website, YouTube channel, Instagram and other social media.
Chronic UTI Australia was founded in 2018 as Australia’s first and only national patient advocacy organisation dedicated to urinary tract infection (UTI). As a not-for-profit organisation, Chronic UTI Australia strives to have UTI added to Australia’s public health agenda by advocating for awareness, recognition, education, research and improved testing and treatment for all forms of UTI. Chronic UTI Australia is proudly aligned with its international sister organisations in a new initiative for greater global advocacy for UTI. A united, worldwide push can only strengthen the patient voice and help achieve the changes we all seek.
CUTIC is a not-for-profit organisation formed by a small group of expert patients in 2016. We work closely with clinicians, researchers and other professionals to achieve the following aims:
- Raise awareness about ongoing, chronic urinary tract infections
- Challenge current tests which fail to diagnose a significant number of UTIs
- Gain official recognition and formal treatment guidelines for chronic UTI
- Enable swift diagnosis of chronic UTI in order to avoid any misdiagnoses of interstitial cystitis, painful bladder syndrome and urethral syndrome
- Ensure effective specialist treatment for chronic UTI is available
Let’s Talk UTI is a nonprofit organization dedicated to creating awareness, education, and community around urinary tract infections – the most diagnosed outpatient infection in the United States. We serve as a voice for change, supporting research and advancing education to transform UTI care
Join the alliance
If you are involved in a patient related advocacy organisation anywhere in the world and would like to join the global alliance to advance UTI understanding and management, please get in touch.
Email: contact@apur-global.org