The Hearing Patient Voices survey was conducted by Chronic UTI Australia (Inc.). The aim of the survey was to better understand the impacts of chronic UTI on individuals, as well as potential impacts on the health system and society in general.
Four key themes emerged from the survey data:
People with chronic UTI endure an enormous amount of unnecessary, preventable suffering. The Hearing Patient Voices survey showed that the distress of experiencing painful and life-altering physical symptoms is significantly compounded by a lack of understanding and mismanagement in the health system. Until now, the personal, financial and emotional impacts associated with this disease have been grossly underestimated and under reported. To stem this growing health problem, urgent collaboration between policy makers, health professionals, researchers and patient groups is needed to prioritise: