Share your story
“Chronic UTI has touched every part of my life. I had to walk away from a career I loved. My marriage ended. Parenting feels overwhelming most days. I’ve stopped seeing friends and pulled away from the world. I feel incredibly alone, trying to cope with a condition that doctors dismiss—maybe because they don’t know how to treat it. I’ve been told my symptoms are caused by stress, when in reality, it’s the symptoms that are causing the stress.”
Kate, 42, Brisbane, QLD
Share how chronic UTI has impacted your life
Your story matters. Personal experiences bring the reality of chronic UTI to light in ways that facts alone cannot. They inspire empathy, drive change and help influence decision-makers.
By speaking up, you help us build a stronger voice for advocacy. Together, we can push for recognition, research and better diagnostics and treatment for chronic UTI.
Whether you choose to share your story publicly, anonymously, or privately, every voice counts—and we need to hear yours.
With your permission, we will share your story on our social media and other publicity materials.
Tell us how chronic UTI has affected you
Other ways to act
Write to your local MP
Spread the word online
Sentenced by UTI photo challenge
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We provide up-to-date information and help with navigating chronic UTIs. Sign up to our email list and receive a copy of our Understanding Chronic UTI information booklet.